Browsing by Subject "Disease-specific QoL measure"

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    • Quality of life in mucopolysaccharidoses : construction of a specific measure using the focus group technique 

      Oliveira, Michele Rosana; Schwartz, Ida Vanessa Doederlein; Costa, Liciane da Silva; Maia Filho, Heber de Souza; Ribeiro, Márcia Gonçalves; Guerreiro, L. B.; Acosta, Angelina Xavier; Rocha, Neusa Sica da (2018) [Journal article]
      Abstract Objective: To describe the perceptions of patients, their caregivers, and their healthcare providers to the development of a new specific instrument for assessment of the quality of life (QoL) in patients with ...