Listar por autor "Evans, Kathryn"
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Minimal clinically important difference for the 6-min walk test : literature review and application to Morquio A syndrome
Schrover, Rudolf; Evans, Kathryn; Giugliani, Roberto; Noble, Ian; Bhattacharya, Kaustuv (2017) [Artículo de periódico]Morquio A syndrome is an ultra-rare, inherited lysosomal storage disorder associated with progressive, multisystemic clinical impairments, causing gradual loss of functional capacity and endurance, impaired quality of life, ...